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A Way to Get PALS “Outside”
At this point, Brian lives in his power wheelchair and doesn't really like to be moved around because it stirs up his secretions. We moved our bed into the living room and...
Dear ALS Caregiver
As we enter the 10th year battling ALS, I decided to write a letter to myself as a new ALS Caregiver. There are so many things I wish someone had said to me early on. Dear...
Five Ways to Show Empathy
A little goes a long way. Yesterday was a 'me' day. I used two gift cards, one for nails and one for a facial, as these are absolute luxuries in my life at this point....
The ALS Caucus – How You Can Help
Recently, a bi-partisan ALS Caucus was created in order to raise awareness and push for a cure. We'd like to see all 50 states represented on the caucus. (Georgia was...
Five Things Caregivers Can Do To Ease Holiday Stress
Providing care for a PALS (person with ALS) is beyond hard. It is stressful and messy and it doesn't stop. In my last post I talked about how I said no to Christmas this...
Caregiving at the Holidays
I just couldn’t do Christmas this year. Not the way we've done it in the past. The thought of hosting Christmas became completely overwhelming to me and I just decided to...
Five Ways to Deal with Caregiver Guilt
Five Ways to Deal with Caregiver Guilt ⠀⠀⠀⠀⠀As a full time caregiver for my husband with ALS, I get so excited for my day off. By the time Sunday rolls around I am more than...
Five Tips for New ALS Caregivers
Getting a diagnosis of ALS is devastating not only for the patient but for family and friends too. ALS doesn’t discriminate and it moves swiftly. As a caregiver it’s your...
Our Home Care Journey – Finding the Right Care for an ALS Patient
Our Home Care Journey Finding the Right Care for an ALS Patient Disclaimer: This is in no way medical advice. We are not doctors and have no professional medical training....
Our Beekeeping Journey – The First Three Weeks
Our Beekeeping Journey The First Three Weeks Wow! Beekeeping is so much fun. It's fascinating as well. We've already spent hours just watching them from afar. We've already...
Don’t Pay Your Medical Bills! Until You Do This First…
Don't Pay Your Medical Bills! Until You Do These Five Things First... It's happened more times than I can count. I sit down to pay medical bills. As I start to really dig...
Why Taking Time Out for Medical Bills is Worth It
Why Taking Time Out for Medical Bills is Worth It Medical bills. UGH! Such a pain in the ass. You see them in the mail, roll your eyes and wonder what it is this time....