Quick Tips for Reducing Stress in Uncertain Times

We are living in an unprecedented time. The time of coronavirus.  Most of us consider future scenarios, both good and bad. We think about where we’ll be next year, in five years. We consider places…

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Being an ALS Caregiver during the COVID-19 Pandemic

EARLY STAGES IN THE U.S. What a time to be alive. Everything just feels so weird right now. And that’s because it’s not something we’ve felt before. Pandemic. It just seems so crazy. COVID-19 sounds so dramatic,…

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None of This is OK – Living with ALS

Fuck ALS. I know you might not like “the F word”. Cursing makes you uncomfortable. It’s not necessary. I get that. I understand that cursing isn’t something that has to be done. That being said,…

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A Way to Get PALS “Outside”

At this point, Brian lives in his power wheelchair and doesn’t really like to be moved around because it stirs up his secretions. We moved our bed into the living room and that’s where you’ll…

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Dear ALS Caregiver

As we enter the 10th year battling ALS, I decided to write a letter to myself as a new ALS Caregiver. There are so many things I wish someone had said to me early on.…

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