Five More Gift Ideas for Caregivers While often very rewarding, caregiving can be an incredibly daunting task. Many caregivers are well aware that self-care should be a...
caregiving
Ten Days of ALS – Day Nine
EXPECTATION VS. ACCEPTANCE When was the last time you were really disappointed? Was it something at work? How about a situation with a friend or family member? That jerk...
None of This is OK – Living with ALS
Fuck ALS. I know you might not like "the F word". Cursing makes you uncomfortable. It's not necessary. I get that. I understand that cursing isn't something that has to be...
Five Ways to Show Empathy
A little goes a long way. Yesterday was a 'me' day. I used two gift cards, one for nails and one for a facial, as these are absolute luxuries in my life at this point....
Five Ways to Deal with Caregiver Guilt
Five Ways to Deal with Caregiver Guilt ⠀⠀⠀⠀⠀As a full time caregiver for my husband with ALS, I get so excited for my day off. By the time Sunday rolls around I am more than...
Five Tips for New ALS Caregivers
Getting a diagnosis of ALS is devastating not only for the patient but for family and friends too. ALS doesn’t discriminate and it moves swiftly. As a caregiver it’s your...
Living in a Bubble
Living in a Bubble The other day my Instagram story included a video of me at a stoplight talking about how weird it felt to be driving. Before then it had been 87 days...
See Brian’s story
We were honored to have 11 Alive News visit us and feature a story on Brian. Here's the beautiful piece they did. Bet it leaves you inspired! All of Brian's eye gaze art...
I Left My Career to be a Full Time Caregiver
It's been six months since I walked away from my career to be a caregiver. I'd worked all through Brian's ALS diagnosis and disease progression. For seven years I held it...
Life With a Trach and ALS
ALS robs a person of the ability to walk, to eat, to speak and eventually to breathe. As with every loss of function, a decision must be made for how to handle that loss....
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